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Ashley Giannetti's Fundraiser:

Reverse Retts

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April 02, 2016

WOW! We have rasied over $6,500! Thank you so much!  See more
Ashley Giannetti

THE STORY:

My cousin Lauren is a beautiful and brave young woman of 19 years old. She has been suffering with Rett Syndrome her whole life. Rett is caused by a random mutation on the X chromosome. It afflicts primarily girls, with about 350,000 cases around the world, including 16,000 in the U.S. Most girls with Rett develop normally until they are about a year old. Then a regression occurs and they lose skills, including the ability to walk and talk. They also suffer from a host of other painful and debilitating symptoms, including seizures, scoliosis, and gastrointestinal problems. Girls and women with Rett require around the clock care for their entire lives. It has been shown that some girls with Rett have normal cognitive function, but they are often so physically impaired that it’s impossible for them to express their intelligence, hopes, and dreams. They are literally “trapped” in bodies that don’t function. There are currently no treatments or cures for Rett. However, there is good news. We can make a huge difference in the fight against Rett Syndrome for Lauren and so many other girls and women. What is amazing about Rett and what separates it from other neurological disorders is that scientists have shown that it is a curable condition—symptoms have been reversed in mice. But to translate this promising result into treatments and ultimately a cure is going to take much more research, as well as funding to make the research possible. My goal is to raise as much money as possible to support Rett Syndrome Research Trust (RSRT), a non-profit that is the leading charge to fund the most promising research on Rett. You can learn more about RSRT at www.ReverseRett.org.

Please consider making a contribution to RSRT to help Lauren and all the girls suffering from Retts. Your support is fully deductible and after making your contribution you will receive a letter from RSRT as a receipt. If you prefer to send a payment, please make checks payable to RSRT and send them to: Rett Syndrome Research Trust 67 Under Cliff Road Trumbull, CT 06611.  Please write my cousin's name Lauren Dore on the memo of the check. You can also donate directly to RSRT on line at https://reverserett.org/donate/.

Your generousity is greatly appreciated. 

Thank you. 

Ashley 

DONATE

To This Fundraiser

$9,640

MONEY RAISED
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  • Linda Lovett

    $100

  • Elle de Alessandrini

    $50

  • Mario, Rhiannon, Avery and Reese Forlini

    $150

  • Anonymous

    $500

  • Danielle

     

  • Anonymous

    $200

  • Nicole Ostermann

    $50

  • Simon Ok

    $200

  • Jason Kahn & Kristine Ku

    $100

  • Osman family

    $250

  • Taylor O'Meara

    $20

  • Morris Clothier

    $50

  • Wu fam

    $300

  • Maneker

     

  • mark fabry

    $250

  • Anonymous

    $100

  • The Fagen Family

    $100

  • The Quinn Family

    $250

  • The Margolis Family

     

  • Sergio, Kristen ,SJ & Lena Forlini

    $200

  • Sarah Sweeney

    $50

  • Mecane Family

     

  • Catarina

    $50

  • The LoParrino Family

    $300

  • Anonymous

    $100

  • Anjali Tatini

    $50

  • Balmaseda Family

    $100

  • Anonymous

    $100

  • Anonymous

    $100

  • The Loverro Family

    $250

  • The Garro Family

    $200

  • The Quartararo Family

    $100

  • The Manos Family

    $1,500

  • Jeff Maier - SVB

     

  • Anonymous

    $100

  • Anonymous

    $50

  • Syed

    $50

  • Marcia Blieden

    $50

  • Lisa and Danny Stamatelos

    $50

  • Steven almonte

    $25

  • The Hart Family

    $50

  • Patrick Roy

     

  • Lori Russo

    $25

  • The Randall Family

    $50

  • The Gjokaj Family

    $100

  • Adam Goldsmith

    $50

  • Anonymous

    $25

  • Clutch and Mongoose

    $50

  • BK

    $25

  • Jason Roberts

    $100

  • Kim Karim

    $25

  • Anonymous

     

  • Billy Roosen

    $200

  • The Holtmans

    $250

  • DeConcini Family

    $50

  • Rejtig family

     

  • Catarina Cabrera

    $50

  • Daniella Tocco

    $40

  • The Showers Family

    $100

  • Ben, Denise & Jackie Prata

    $100

  • Jennifer Reisner

     

  • Tambe family

    $100

  • The Heaton's

    $50

  • Trevino

    $40

  • The Hamlets

    $80

  • Anonymous

     

  • The Greys

    $80

  • Magee King

    $50

  • Julie Drago

    $50

  • Linda & Emma Lovett

    $100

  • Choy Family

    $160

  • Anonymous

    $100

  • Chase Jackson

    $50

  • Katie McDermott

    $40

  • O'Connor

    $40

  • Sally Carter

    $40

  • Chiara Schmidt

    $40

  • Sophie Brett

    $40

  • Hannah Adler

    $40

  • Amy Greer

    $40

  • Valentina Grether

    $80

  • Zyngier Family

     

  • The Gallos Family

     

  • Anonymous

     

  • The Welsh Family

    $50

  • Dore Family

    $100

  • Carolina Suaid

    $50

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482% Raised of$2,000 Goal

Fundraise for this Campaign

The Team: $9,640 TOTAL RAISED SO FAR

JOIN THE TEAM
Fundraiser Title

Ashley Giannetti

Amount Raised

$9,615

 

481% Raised of$2,000 Goal

Fundraiser Title

Alexander Rapp

Amount Raised

$25

Donor Comments

Carolina Suaid

Carolina Suaid

DONATION: $50

I am very impressed with all your hard work to help the Rett Syndrome Research Trust... and inspired! Keep up the good work Ashley! 3 years ago

Dore Family

Dore Family

DONATION: $100

4 years ago

The Welsh Family

The Welsh Family

DONATION: $50

4 years ago

Anonymous

ANONYMOUS

4 years ago

The Gallos Family

The Gallos Family

Ashely, Thank you for putting your heart into such a special cause. With all of your efforts you are not only raising money to help support people with Retts, you are raising awareness all around you! Wonderful work! 4 years ago

Zyngier Family

Zyngier Family

4 years ago

Valentina Grether

Valentina Grether

DONATION: $80

4 years ago

Amy Greer

Amy Greer

DONATION: $40

4 years ago

Hannah Adler

Hannah Adler

DONATION: $40

Reverse Retts 4 years ago

Sophie Brett

Sophie Brett

DONATION: $40

4 years ago