Keep It Up!
April 02, 2016
BENEFITING: Rett Syndrome Research Trust
My cousin Lauren is a beautiful and brave young woman of 19 years old. She has been suffering with Rett Syndrome her whole life. Rett is caused by a random mutation on the X chromosome. It afflicts primarily girls, with about 350,000 cases around the world, including 16,000 in the U.S. Most girls with Rett develop normally until they are about a year old. Then a regression occurs and they lose skills, including the ability to walk and talk. They also suffer from a host of other painful and debilitating symptoms, including seizures, scoliosis, and gastrointestinal problems. Girls and women with Rett require around the clock care for their entire lives. It has been shown that some girls with Rett have normal cognitive function, but they are often so physically impaired that it’s impossible for them to express their intelligence, hopes, and dreams. They are literally “trapped” in bodies that don’t function. There are currently no treatments or cures for Rett. However, there is good news. We can make a huge difference in the fight against Rett Syndrome for Lauren and so many other girls and women. What is amazing about Rett and what separates it from other neurological disorders is that scientists have shown that it is a curable condition—symptoms have been reversed in mice. But to translate this promising result into treatments and ultimately a cure is going to take much more research, as well as funding to make the research possible. My goal is to raise as much money as possible to support Rett Syndrome Research Trust (RSRT), a non-profit that is the leading charge to fund the most promising research on Rett. You can learn more about RSRT at www.ReverseRett.org.
Please consider making a contribution to RSRT to help Lauren and all the girls suffering from Retts. Your support is fully deductible and after making your contribution you will receive a letter from RSRT as a receipt. If you prefer to send a payment, please make checks payable to RSRT and send them to: Rett Syndrome Research Trust 67 Under Cliff Road Trumbull, CT 06611. Please write my cousin's name Lauren Dore on the memo of the check. You can also donate directly to RSRT on line at https://reverserett.org/donate/.
Your generousity is greatly appreciated.