The Susie Foundation Inc

The Susie Foundation Inc
The Susie Foundation Inc
GoFundMe Charity : Jul 18, 2016
Tax ID: 46-2687969
BASED: West Hartford, CT, United States

CHARITY WEBSITE: www.thesusiefoundation.org

Fighting ALS.

Inspired by a patient. Founded by a caregiver. Dedicated to fighting ALS.

The Susie Foundation can trace its beginnings back to November 6th 2009, the day the organization's inspiration and namesake, Susan Ready Matthews, was officially diagnosed with Amyotrophic Lateral Sclerosis. 


As catastrophic as the diagnosis was, Susan met the challenges posed to her by ALS head-on.  Supported by her friends, family, and caregivers, Susan fought ALS with the same tools she had fought all the other hardships of life: inexhaustible perserveance, an unshakeable sense of humor, overwhelming positivity, inspiring selflessness, and unremitting love for life and those around her. 


Though she passed on in April of 2011, the same energy that fueled Susan's fight against ALS continues to fuel TSF today. Following from her example and inspired by our time walking alongside her, we seek to utilize Susan's lessons of love, positivity, and strength in order to bring a helping hand and lasting hope to those struggling with ALS each day. 


Founded in the spring of 2013, The Susie Foundation was launched with the goal of directly supporting ALS patients, families, and caregivers in Connecticut, while vigorously contributing to the eventual eradication of the disease.   Since that time, the agency has rasied over $350,000  to support patients and families living with ALS.  


Today, The Susie Foundation serves families living with ALS in two unique ways. 


The first is our Flex Grant Program, which contributes well over $40,000 per year directly to local patients and families living with ALS throughout our service area.  Through this program, patients have the ability to seek financial reimbursement for costs that are not traditionally covered by private insurance, Medicare, Medicaid, and other assistance programs. By helping patients afford such essential products and services like respite care, adaptive devices, and home modifications, The Susie Foundation helps patients remain living safely and comfortably at home by easing a portion of the financial burden levied by an ALS diagnosis.


The second, is our ALS Youth Mentoring Initiative, which harnesses the power of one-to-one mentorship to support young caregivers across Connecticut who are helping support their parent, guardian, or loved one as they meet the daily challenges of living with ALS.


To learn more about our programming please feel free to visit us on the web at www.TheSusieFoundation.org


We are a 501(c)(3) tax exempt public charity.

Tax ID: 46-2687969 • www.thesusiefoundation.org

Fundraisers

2021 Team Susie Memorial Day Virtual Road Race Image 2021 Team Susie Memorial Day… Amount Raised: $0
 

0% Raised of$5,000 Goal

2021 It's O'Kay Classic Sponsorships Image 2021 It's O'Kay Classic Spon… Amount Raised: $0
 

0% Raised of$10,000 Goal

The 2021 It's O'Kay Classic Image The 2021 It's O'Kay Classic Amount Raised: $0
 

0% Raised of$20,000 Goal

Sponsorships Image Sponsorships Amount Raised: $1,500

2021 Susie Open Image 2021 Susie Open Amount Raised: $0
 

0% Raised of$10,000 Goal

Stand Up for the Mizzones!  Image Stand Up for the Mizzones! Amount Raised: $4,000
 

27% Raised of$15,000 Goal

Team Susie Road Race Image Team Susie Road Race Amount Raised: $3,450
 

138% Raised of$2,500 Goal

Susie Fest 2020 Image Susie Fest 2020 Amount Raised: $9,560
 

191% Raised of$5,000 Goal

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Events

2020 SusieFit Image

2020 SusieFit

Amount:

$0

 

0% Raised of$5,000 Goal

The 2020 It's O'Kay Classic Image

The 2020 It's O'Kay Classic

Amount:

$13,600

 

136% Raised of$10,000 Goal

2020 Susie Open Image

2020 Susie Open

Amount:

$16,725

 

167% Raised of$10,000 Goal

Sunday Funday with                             UConn Basketball Image

Sunday Funday with ...

Amount:

$7,237

 

96% Raised of$7,500 Goal

Sam Grenus' Run for Susie Image

Sam Grenus' Run for Susie

Amount:

$1,050

 

105% Raised of$1,000 Goal

Team Susie at the 2019 Falmouth Road Race Image

Team Susie at the 2019 Falmouth Roa...

Amount:

$7,983

 

106% Raised of$7,500 Goal

Team Susie at the 2019 Hartford Marathon Image

Team Susie at the 2019 Hartford Mar...

Amount:

$6,855

 

34% Raised of$20,000 Goal

Team Susie at the 2019 Spartan Sprint at Fenway Park Image

Team Susie at the 2019 Spartan Spri...

Amount:

$3,920

 

39% Raised of$10,000 Goal

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