I am so proud to once again support myFace and my amazing, inspiring cousin Dina (aka Dee Dee) Zuckerberg at this year's Races for Faces. Please consider making a donation to our team, The Bold Faces, and supporting the vital work that myFace is doing to help families whose children are struggling with cranial facial conditions. No amount is too small or too large! Also, please read Dina's campaign story below. If that doesn't inspire you to donate then I don't know what will! Thank you for your support!
It has been almost four years since I started as Director of Family Programs at myFace (formerly the National Foundation for Facial Reconstruction), and it has been an amazing journey. I have created much-needed support groups for our patients and families and other opportunities for them to connect and network with each other. I am also excited to share that I initiated a partnership with Facing History and Ourselves to create a curriculum for the Young Adult novel, Wonder. It is about a young boy with a facial anomaly called Treacher Collins who is being mainstreamed into the fifth grade. The book has been on the NYT Best Seller List and is being read in schools around the world. In the past 2 years, I have presented at schools about my own experience growing up with a craniofacial condition. It has been incredibly rewarding. For more than 65 years, myFace has supported the medical and psycho-social treatment of those with facial differences, whether congenital or acquired, as well as research and public awareness. Many of our patients live at or below the poverty level or have no insurance, and 95% are in care that spans their entire childhood. The team of world-class specialists at the NYU Langone Medical Center provides state-of-the-art treatment for 2,000 patients each year. As a child into my adult years, I was a patient there so I speak first-hand when I say they have been doing amazing work. I am thrilled to be at myFace as I bring my own life experience to the work I do. It is certainly where my passion lies.
Dina Zuckerberg wrote -