BENEFITING: Cystinosis Research Network, Inc.
EVENT: Cystinosis 5K Fun Run & Walk
EVENT DATE: May 01, 2011
Troy Wyman wrote -
Kacy lives life to the fullest...she also lives with Cystinosis. Living with Cystinosis is a balancing act. It involves careful and frequent dosing. It is a crazy regime run by the clock, around the clock. Kacy doesn't see it that way. Taking medications are blips in her day, mere pauses that happen in between school, play dates and soccer games. They are frequent, yet brief, moments that are taken to sustain life.