Dysautonomia is the definition of Courage. It has changed my life, and now I am FIGHTING back! Please help me and others like me to continue to fight back by helping to Fund Courage!
Hello my FOD Warriors, friends and family. As most of you know I have couple of forms of an incurable invisible illness called Dysautonomia (pronounced Dis~auto~no~me~a). What is it? Think about all the things that you take for granted that your body does for you without ever having to think about it. Your heart pumping, digesting food, breathing, blood flowing through your veins litteraly everything that you never have to think about. That's all controlled by your bodies autonomic nervous system (ANS). Now imagine if your system malfunctioned and couldn't do those things that are vital for living properly. Yeah, that's what I have. Fun right?
October is Dysautonomia Awareness Month and I've dedicated my life to helping spread awareness for it. My journey, though tuff and long, has brought me to a place where I'm able to represent thousands of people like me. These people are without a voice and I'm blessed to be able to speak up and be that voice for them. God has lead me to where I'm at right now and shown me that one person can truly make a difference in the lives of others.
Just to give you an idea, it is estimated that there's nearly 70 million people worldwide with a form of Dysautonomia. There's only an estimated 10 million people worldwide with Parkinson's Disease. I'm sure your now wondering why you've never heard about Dysautonomia more often then right? The National Institute of Health (NIH) our lovely government, has dropped funding for research because there are currently no blood tests or imaging scans that can effectively diagnose Dysautonomia. That's all about to change thanks to a leading researcher named Dr Blair Grubb of the University of Toledo. The Dysautonomia Advocacy Foundation recently teamed up with Dr. Grubb. He and his team have hit an exciting point in their research. They're currently identifying important antibodies that could lead to a biochemically based diagnosis and also holds the key to reestablishing national funding! Imagine a blood test that could finally diagnose Dysautonomia and help millions!
This is where your generous donation comes in. Dr Grubb and his team need the funding to get to the next level and create this test! Myself and millions of others desperately need this research to continue. We currently have to pay for medications out of pocket, until the big insurance companies and the NIH have the biochemical backing that they require. Many treatments are completely out of reach altogether. As a patient out of treatment options, I can not express to you how important this is to me.
Thank you all for taking the time to read about this important cause and I truly do appreciate you taking the time out of your day to read about it. I have pledged to raise $1000 or more! By joining my TEAM and generously skipping your latte or some other indulgence for just one day (seriously just one day) your $5 or any $ you can spare, will help me and others like me get the treatments we deserve. If you can't donate you can still help spread awareness by sharing this or creating your own Team on the link above. Thank you all again and God Bless