BENEFITING: PRADER-WILLI CALIFORNIA FOUNDATION
ORGANIZER: PRADER-WILLI CALIFORNIA FOUNDATION
EVENT: JetBlue Long Beach Marathon 2017
EVENT DATE: Oct 07, 2017
Amberly
1
THE STORY:
PRADER-WILLI CALIFORNIA FOUNDATION wrote -
Prader-Willi syndrome is a rare genetic disorder. It causes many symptoms including its hallmark symptoms: an insatiable appetite no matter how much food is eaten, and behavior problems similar to but often more severe than Autism. With early diagnosis, appropriate medical and therapeutic interventions, and continuous support, the prognosis for children with PWS is improving. Prader-Willi California Foundation provides individuals with PWS, their families, and the professionals who serve them with education, support, research opportunities, and advocacy services. The diagnosis of Prader-Willi syndrome can be devastating, but PWCF is dedicated to improving the quality of life of all who are impacted by PWS and to bringing families together to create the miracles our children need. Our vision is that persons with PWS will live full lives without limits. Help us make the miracles our children need. Learn more at www.pwcf.org