Team Muscle Makers - Wine & Dine Fundraising Team
EVENT DATE: Nov 05, 2020
Thank you for taking a moment to visit our fundraising page.
We appreciate your continued support in our family's fight to fund a cure for uncommon congenital muscular dystrophies. As you know, our Parker was diagnosed with UCMD just before he turned three years old. In 2017 year he was official moved back to the "undetermined" category while on a research visit to the National Institute of Health in D.C. Finally in 2019 he received a corrected diagnosis of an even more rare muscle disease than they originally diagnosed. He has recessive Desmin myopathy. We are doing everything in our power to keep him healthy and happy and help other kids like him. Many kids like Parker require the use of a power wheelchair and/or respirator/breathing assistance. In 2019 Parker began using breathing assistance at night. And while he can still walk moderate distances, he does use a wheelchair when necessary. In addition, as a result of his muscle disease, he was diagnosed with heart failure in the spring of 2019. Our lives have definitely changed in the most recent months.
We feel fortunate that Parker's needs aren't greater, but we also feel the need to help others and bring awareness to this very rare muscle disease. Please join us in our fight to find a cure for UCMD and other uncommon congenital muscle diseases.
So, here we are again, asking for your support. I cannot even express to you all how thankful we are for the continued dedication you all have given our team. With your help we are making a difference! None of this would be possible without your cheers, your prayers and your generous donations.
Any donation is appreciated.
Thank you, from the bottom of our heart. The Mayorgas Family