Team Muscle Makers - 2020 - WW Marathon Weekend
EVENT DATE: Jan 09, 2020
Thank you for taking a moment to visit our fundraising page.
Thank you for your continued support in our team's fight to fund a cure for UCMD and other uncommon congenital muscular dystrophies. Our inspiration, Parker, was diagnosed with UCMD just before he turned three years old. Two years ago he was official moved back to the "undetermined" category while on a research visit to the National Institute of Health in D.C. We are doing everything in our power to keep him healthy and happy and help other kids like him. However, most kids with UCMD are in far greater need than Parker. Many require the use of a power wheelchair and/or respirator/breathing assistance. We feel fortunate that Parker's needs aren't greater, but we also feel the need to help others and bring awareness to this very rare form of muscular dystrophy. Please join us in our fight to find a cure for UCMD and other uncommon congenital muscular dystrophies. We have a team of runners heading to Walt Disney World to run various events during marathon weekend in honor of these kids. Parker is run/walking the 5k himself!
So, here we are again, asking for your support. I cannot even express to you all how thankful we are for the continued dedication you all have given our team. With your help we are making a difference! None of this would be possible without your cheers, your prayers and your generous donations. We aren't afraid to work for it either, so if you want to put us to work for a donation we are more than happy to do that! Any donation is appreciated.
Thank you, from the bottom of our heart. The Mayorgas Family