BENEFITING: CHOLANGIOCARCINOMA FOUNDATION
ORGANIZER: CHOLANGIOCARCINOMA FOUNDATION
EVENT: Philadelphia Marathon 2017
I had never heard the word cholangiocarcinoma before the summer of 2015, when a close family member was diagnosed with this particularly nasty cancer. Cholangiocarcinoma (bile duct cancer) is a rare and deadly cancer with little name recognition or awareness. If detected early - before it spreads to other organs - surgical intervention can give CC patients a reasonable shot at life. Unfortunately, close to 90% of patients are not eligible for surgery because it is caught too late. This is what happened in my family, and as a result the prognosis was grim - 12 to 18 months to live for an otherwise healthy man in his early 40s. Sadly, the prognosis turned out to be correct and he passed away in December of 2016.
Now, I am running the Philadelphia Half Marathon in support of the Cholangiocarcinoma Foundation with 2 goals:
1) To bring awareness to cholangiocarcinoma. Simply being aware of this disease can help lead to an early diagnosis and a much better prognosis. I hope that by raising awareness around cholangiocarcinoma I can prevent other families from having to deal with the pain and havoc caused by CC.
2) To raise money for the Cholangiocarcinoma Foundation, whose mission is to find a cure and improve the quality of life for those affected by CC.
Please see below for more information regarding the Cholangiocarcinoma Foundation.
The Cholangiocarcinoma Foundation was also an invaluable source of knowledge and support for my family during our encounter with CC.
Please consider making a donation to my page to support the Cholangiocarcinoma Foundation and the wonderful work they do, and thank you for reading!
The Cholangiocarcinoma Foundation is the only non-profit organization in North America exclusively dedicated to finding a cure and improving the quality of life for those affected by cholangiocarcinoma (bile duct cancer). Approximately 6,000 people in the United States are diagnosed each year with this hard-to-diagnose, difficult-to-treat, fatal type of cancer. Cholangiocarcinoma is a rare but deadly cancer that has very little name recognition or awareness. Due to this lack of visibility, it is often overlooked as symptoms can mimic those of other illnesses and diagnosis comes too late. Conventional cancer treatments remain ineffective against cholangiocarcinoma, and most people diagnosed with advanced disease have less than a 5% chance of surviving at least five years. While almost 2 out of 3 people with bile duct cancer are 65 or older, people of nearly any age can be diagnosed, with the youngest known patient being 12 years old. There has been an alarming increase in the past decade of young individuals being diagnosed in their 20’s, 30’s or 40’s. Your support of Team CCF will significantly enhance awareness and recognition of bile duct cancer and raise critical funds for research, outreach and education to serve all those affected by cholangiocarcinoma. For more information, visit www.cholangiocarcinoma.org