BENEFITING: DETERMINED2HEAL FOUNDATION INC
ORGANIZER: DETERMINED2HEAL FOUNDATION INC
EVENT: CrowdRise Holiday Challenge
Imagine what it would be like if you duct taped your hands into fists...for the next twenty years. That is one part of what life is like for my husband. Think on that for a minute...
For the first time in 20 yrs, the love of my life built and lit a fire this week! For the first time last year, he got his OWN plate out of a cabinet. For the first time, he can pick stuff up on the ground if he drops something. And the list goes on.
I am blessed that I happended to stumble across SPINALpedia.com late one night after relentlessly seraching for ways to improve my husband's life. This is something I would do every night...all night...for years (still do). It took me TWO years before I stumbled on to the site. The site is a great and free resource that is user-generated. Bascially, other disabled people post video's talking or showing how they manage to do things.
My husband is a quadriplegic so he has no use of legs or hands. After 20 yrs (he broke his neck in 1992), due to information I learned on SPINALpedia.com, he now has more independence than he has ever had as a paralyzed person. I learned a way for him to use his paralyzed hands!!! He says it's been the BEST discovery he has come across since 1992. SPINALpedia has ton of other useful videos about all kinds of topics and scenarios. It is an invaluable tool for anyone with a spinal cord injury (SCI) and/or for wheelchair users and their loved ones in general. Check out SPINALpedia.com for sure if your loved one has a SCI.I am now friends with the site's creator. She rocks!
NO ONE should have to wait TWENTY YEARS to be able to pick something up off the ground or open a cabinet...or just to find other people in our same situation facing the same scary stuff we face every day. And because of the tremendous impact the site has had on me as a caregiver, since now my husband is a little more independent, I am bringing awareness to this site. 20-25% of all Americans are caregivers. Caregiving is exhausting and hard. This peer-to-peer site has made it a little easier and a little less scary for us. Information I have learned on SPINALpedia.com has changed my life the last two years.
I don't know how I could have managed much longer as a caregiver without resources like this. My life's goal in all that I do, is to help people help themselves. Check out the site and consider contributing (any amount) to SPINALpedia so they can get this site in front of all the hospitals and rehab centers, caregivers, support groups across the country (and beyond) so another family doesn't have to go without these tips and tools that have brought solidarity to me and independence to my husband. Read on and help me help other caregivers, other disabled people...it could be you, is already you, or someone you know.
DETERMINED2HEAL FOUNDATION INC wrote -
One in 50 people in the United States live with paralysis. Each year, 12,000 people become paralyzed due to car accidents, gunshot wounds, sports injuries, and disease. These people and their families are often left feeling helpless and overwhelmed as they struggle to adapt their lives to a disability. Many fall into patterns of unemployment, poverty and depression.
SPINALpedia.com -- a website of user-generated how-to videos -- was founded to show the paralysis community that there are no limits to what they can do. From the simplest tasks -- like how to get dressed -- to extreme adventures -- adapted skydiving, anyone? -- SPINALpedia is the go-to resource for the paralysis community.
Your money will help us:
- Launch a new website that is compatible with mobile devices
- Send materials to partner hospitals to reach people who are newly paralyzed
- Expand our services to other languages
Help us spread our message to the world. In the face of paralysis, life is not over. It's just different. SPINALpedia provides those living with paralysis -- and their families -- the resources needed to re-establish their lives. You never know when your life will be touched by paralysis. Please consider a donation to help us reach our goal of spreading SPINALpedia worldwide!