Today is the Day!
May 20, 2017
I am Juliana Elizabeth and I am almost 3 years old! I am still on this HI journey and my low sugar continues to be managed with Diazoxide. I continue to have my glucose checked multiple times a day, fasting studies, testing and follow-ups at CHOP. I also have a few other medical issues that I am told don't all relate to my HI...doctors say I am one of a kind! I like bubbles, the playground, and being pushed around in my red car outside! I may look fine on the outside but I have to eat often even when I don't feel hungry and extreme temperatures and exercise often times make me not feel well. Join me to raise money for research since every dollar that is donated to Team Juliana will be matched (doubled!) by the University of Pennsylvania, and will go toward research and prevention of this disease. It is important to continue to spread awareness of HI, the rare disease I and others have, as well to educate people to prevent the serious side effects it can cause if not properly diagnosed early on and treated. Please join and donate today! Thank you!!