BENEFITING: EB Research Partnership
ORGANIZER: EB Research Partnership
EVENT DATE: Nov 03, 2013
Ellie is now 7 years old and was born with Epidermolysis Bullosa, a gradual physical debilitating disorder with no cure and no treatment. She lives every day in her life wrapped in bandages and has some form of pain daily. We are looking forward to a cure so that Ellie and others like Ellie can live a pain free, bandage free life as soon as possible.!
.The Jackson Gabriel Silver Foundation is a nonprofit organization founded with the mission to treat, cure, and end Epidermolysis Bullosa ("EB"). EB is a devastating and life-threatening skin condition that affects children from birth. Individuals with EB lack a critical protein that binds the layers of skin together. Without this protein, skin tears apart, blisters, and shears off, leading to severe pain, disfigurement and wounds that never heal.
The Jackson Gabriel Silver Foundation ("JGSF") is aggressively funding research and supporting the tremendously encouraging and viable scientific work taking place at leading institutions around the country, including Stanford, USC, and the University of Minnesota. In three short years, JGSF has raised over $1.5 million and has made a significant difference in the field of EB research and the pursuit of a cure.
Thank you all for your support in continuing our mission!