This is a fundraiser for a test that could save kids hearts and lives.
I can't put into words how scary it is to see your baby sick and not know what is wrong with him, have doctors not know what is wrong with him and have a different diagnosis every day. Kawasaki Disease (KD) is the leading cause of acquired heart disease in children. Once they get sick, you have a ten day window to get the treatment to save their heart, but children often get misdiagnosed. Recently, when my youngest son had Kawasaki Disease and was misdiagnosed, I can’t tell you how frustrating it was not knowing what was wrong with him. Unfortunately, because synptoms often resemble those of other childhood diseases and there's no definitive test available, the diagnosis of Kawasaki Disease is made by an experienced clinician on the basis of clinical symptoms and lab findings. But now there might be a test to diagnose KD early on.
A team of doctors at Stanford University and UCSD have devised a prototype for a diagnostic test. This is a huge deal. This test could be 95% accurate but it needs to be tested for two years before it can be used. We NEED this test because of the ticking clock to get treatment to prevent heart damage that can lead to a heart attack.
It is difficult to get funding, even for a serious childhood disease. Today I am asking you to join me in raising the funds to run a two year trial of the diagnostic test. Now is the time to donate-The Gordon and Marilyn Macklin Foundation will match dollar for dollar up to $100,000 for every dollar we raise!
With this test, no parent will have a sick child with Kawasaki Disease and wonder what it is; no child will have silent heart damage that can cost them their life.
Let’s save some little hearts.
NOTE: IF YOU WANT TO KNOW THE SYMPTOMS TO LOOK OUT FOR...Go to kdfoundation.org to learn more.
IF YOU ARE A KD SURVIVOR... you can help. There is little information known about the long term effects of Kawasaki Disease, whether there was lasting heart damage or not. One of the leading researchers is doing a study on this and needs participants. Email Dr. Jane Burns at Adultkd@ucsd.edu to be part of the study.
Thank you. So. Much.
To see Sarah Chalke on Huff Post Live, please click here. Watching the video is a great way to learn about the cause.