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DEBBIE BROWN BNY MELLON's Fundraiser:

CYSTIC FIBROSIS FOUNDATION - RUN TO CURE CF - BNY Mellon

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DEBBIE BROWN's Photo
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BENEFITING: Cystic Fibrosis Foundation

ORGANIZER: Cystic Fibrosis

EVENT: 2018 Pittsburgh Marathon

EVENT DATE: May 06, 2018

DEBBIE BROWN BNY MELLON

THE STORY:

  Emma, my granddaughter, is 15 years old and a 9th grader at Penn Trafford High School. Emma has Cystic Fibrosis and the reason I "Run to Cure CF.” What Is Cystic Fibrosis? Cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States (70,000 worldwide). A defective gene and its protein product cause the body to produce unusually thick, sticky mucus that clogs the lungs and leads to life-threatening lung infections, and obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food. The first year of Emma’s life was a very horrific and terrifying journey, not only for her but for her family as well, particularly her mom, Kris. Emma received multiple breathing treatments daily as well chest PT several times a day. Emma was frequently on antibiotics to help keep her lungs clear. At age 5, Emma was diagnosed with CF related diabetes; she is now insulin pump dependent. Emma is a very intelligent active teenager who plays tennis, loves to be on stage and is very involved in her church youth group.  Emma does all of that in spite of her daily CF regimen that includes nightly gtube feedings, 1 hour of treatments and vest 3-4 times per day.  Emma also takes enzymes with every meal to help her digestive system work properly.  She has been getting IV antibiotics thru a Mediport for 2-3 week courses three to four times a year for more than a few years. Emma's Lung functions (PFTs) have struggled to stay at least 60%. Healthy PFTs are 120% so her lungs are working at only 50% or less.  I asked her how she is able to run in tennis and she said it depends on how much running her opponents do. I guess that wasn’t the answer I expected but to her it made perfect sense; she goes with life as is. Emma has double delta f508 mutation. Orkambi and Symdeko are the CFTR Modular meds for her mutation. She tried Orkambi for 3 months but had too many negative side effects that outweighed the positive. CF Research will continue until the negative side effects are minimal or non-existent.   

$3,518

MONEY RAISED
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  • BNY

    $90

  • Debbie Brown

    $100

  • Susan Moore

    $100

  • Speakman Financial Group

    $500

  • Patty & Tom Mazon

    $50

  • Anonymous

    $100

  • Waterbury Family Trust

    $100

  • Jay Waterbury

    $100

  • Kathleen Midock

    $100

  • Susie Murtha

     

  • Anonymous

     

  • Bev

    $100

  • Tammi Ventura

    $25

  • Tj & Diane Shook

    $25

  • Cash

    $60

  • Russell & Patricia

    $25

  • Denise

    $200

  • Anonymous

     

  • Kevin and Mimi Craver

    $100

  • Gelpi Family

    $50

  • Buggie & Little Anth

    $100

  • Joe and Tracey Casciato and boys

    $50

  • Dot Craver

    $100

  • Great Strides Emma’s Entourage

    $100

  • Fundraising Match

    $1,143

  • Russell & Patricia Kuba

    $25

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141% Raised of$2,500 Goal

Fundraise for this Campaign

The Team: $152,583 TOTAL RAISED SO FAR

Fundraiser Title

Audrey Burgoon

Amount Raised

$14,389

 

111% Raised of$13,000 Goal

Fundraiser Title

Dale Himmler

Amount Raised

$5,385

 

98% Raised of$5,500 Goal

Fundraiser Title

Clifford Milowicki

Amount Raised

$5,360

 

107% Raised of$5,000 Goal

Fundraiser Title

Corinne Powell

Amount Raised

$4,721

 

157% Raised of$3,000 Goal

Fundraiser Title

Hannah Camic

Amount Raised

$4,435

 

111% Raised of$4,000 Goal

Fundraiser Title

Lindsay McIntosh-Yeomans BNY Mellon

Amount Raised

$3,606

 

120% Raised of$3,000 Goal

Fundraiser Title

DEBBIE BROWN BNY MELLON

Amount Raised

$3,518

 

141% Raised of$2,500 Goal

Fundraiser Title

Autumn Harris

Amount Raised

$3,227

 

129% Raised of$2,500 Goal

Donor Comments

Russell & Patricia Kuba

Russell & Patricia Kuba

DONATION: $25

1 year ago

Fundraising Match

Fundraising Match

DONATION: $1,143

2 years ago

Great Strides Emma’s Entourage

Great Strides Emma’s Entourage

DONATION: $100

Emma Chichilla 2 years ago

Dot Craver

Dot Craver

DONATION: $100

So proud of my daughter 2 years ago

Joe and Tracey Casciato and boys

Joe and Tracey Casciato and boys

DONATION: $50

2 years ago

Buggie & Little Anth

Buggie & Little Anth

DONATION: $100

Go Grama Deb !!!! 2 years ago

Gelpi Family

Gelpi Family

DONATION: $50

2 years ago

Kevin and Mimi Craver

Kevin and Mimi Craver

DONATION: $100

2 years ago

Anonymous

ANONYMOUS

2 years ago

Denise

Denise

DONATION: $200

Good Luck Debbie! I wish I was running with you!!! I’ll be cheering you on! ❤️ 2 years ago