EVENT: Pittsburgh Marathon 2016
EVENT DATE: May 01, 2016
In June of 2015 our world was turned upside down after learning that much to our surprise our baby boy would be affected with Cystic Fibrosis, we knew nothing about it, and knew no one that had it. We had a few months to learn a little about it and learn how our lives would go on from here. Landon Joseph Magee was born at 5:11am on September 23. We were very anxious as we had met with multiple physicians before that time and we were concerned about bowel abnormalities, but Landon, like a little champion made it out of his mommy quickly and out of the NICU within a few hours, proving that even though he had CF, his bowel was working fine.
We have been doing our best to make sure that Landon, eats enough, takes all of his meds and gets his treatments so he stays as healthy as possible. We are constantly monitoring his weight to make sure he is gaining properly and adjusting his enzymes. He takes salt, a vitamin and gets Chest physiotherapy twice a day right now. We are vigilant about handwashing and keeping him free from colds and flu viruses. He is a happy baby and we could not love him anymore. Please help us raise money to find a cure for this disease. We will continue every day to do all we can to fight this disease for our baby.
We thank you. Every bit helps.
What Is Cystic Fibrosis?
Cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States (70,000 worldwide). A defective gene and its protein product cause the body to produce unusually thick, sticky mucus that clogs the lungs and leads to life-threatening lung infections, and obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food.
In the 1950s, few children with cystic fibrosis lived to attend elementary school. Today, advances in research and medical treatments have further enhanced and extended life for children and adults with CF. Many people with the disease can now expect to live into their 30s, 40s and beyond.