BENEFITING: FJC - A Foundation of Donor Advised Funds
Jessica Newman wrote -
Ryder's Heart Story
Ryder James Newman was diagnosed with Hypoplastic Left Heart Syndrome at his 20 week ultrasound. He was found to have IAS (intact atrial septum) at his first fetal ECHO. He traveled to Boston Children's hospital (via mommy) and at 24 weeks underwent a fetal atrial septostomy. Though his atrial septal stent dislodged, a balloon septostomy created the desired opening in the atrial septum. He was born at 40 weeks at Children's Mercy Hospital in Kansas City where he had his Norwood surgery at age 1 week. He was a fighter, and survived ECMO, renal failure, a CNS hemorrhage, several clots, endocarditis, and worst of all, tummy time. He sailed through his Glenn surgery and then a g-tube placement to get ready to come home but got a cold and developed more respiratory issues. Then he had a chylothorax. While we prayed for him to come home for Christmas, he was taken "home" to heaven on November 30, 2012 and now watches over his big sister Addy and his little brother Bowen James.