BENEFITING: Foundation for Prader-Willi Research, Inc.
EVENT: NYC Half 2014
EVENT DATE: Mar 16, 2014
Welcome and thank you for donating! This fundraising page is dedicated to my son, Max, born with a rare genetic disorder called Prader-Willi syndrome.
Prader-Willi syndrome (PWS) is the most comon know genetic cause of life-threatening obesity in children. Although the cause is complex, it results from an abnormality on the 15th chromosome. It occurs in approximately 1 in 15,000 births in both males and females.
PWS typically causes low muscle tome, short stature if not treated with growth hormone, incomplete sexual development, and a chronic feeling of hunger that, coupled with a metabolism that utilizes drastically fewer calories than normal, can lead to life-threatening obesity. The food compulsion makes constant supervision a necessity. Average IO is 70. Social and motor deficits exist as well.
Currently, there is no cure. To date, research has been targeted towards treating specific symptoms. For all individuals with this disorder, eliminating the insatiable appetite and obesity would represent significant improvement in the quality of life and the ability to live independently.
The Foundation for Prader-Willi Research is dedicated to finding a cure! We ask that you donate in order achieve that goal!