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Rare Disease Foundation

Providing hope for rare & undiagnosed diseases

rarediseasefoundation.org Tax ID 819326224RR0001

The Rare Disease Foundation works to revolutionize awareness and research resources through grants, community and clinical supports to facilitate improved patient care. Working closely with global clinicians specialized in rare diseases, families, and patients, we ‘connect the dots’ to escalate new treatments and cures for rare diseases.


We are helping to transform the lives of Canadian and global citizens living with a degenerative or life-threatening rare disease. We enhance communication between researchers while keeping patients and families informed of encouraging new developments and treatments.


● We are inspired by the resiliency and determination of the rare disease community. We will serve and support the rare disease community in as many ways as possible

● We listen to the needs of the community and amplify the voices of those affected by rare conditions.

● We are agile and efficient but also innovative and transformative, much like the community we serve.