Rare Disease Day 2019
February 28th is Rare Disease Day. This is Running On Air's 4th annual virtual race and fundraising event. The money donated either goes to the National Organization for Rare Disorders or another Rare Disease non-profit.
There are over 7000 diagnosed rare diseases in the United States affecting between 25 and 30 million people. It is estimated that 350 million people world wide live with a rare disease. Approximately 50% of those with a rare disease are children and 30% of those children won't live to see their 5th birthday.