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Mallory Pavilonis' Fundraiser:

Cecelia's Secret Agents

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BENEFITING: National Fragile X Foundation

EVENT: Tough Mudder Arizona 2016

EVENT DATE: Apr 30, 2016

Mallory Pavilonis

THE STORY:

Fragile X Syndrome is a genetic condition that causes a range of developmental delays and issues. The National Fragile X Foundation enriches lives through education and emotional support, promotes public and professional awareness, and conducts research towards improving treatments and finding a cure for Fragile X.

 

This organization is near and dear to my heart because I know a family directly effected by this condition. I have known the Batdorf family for about 5 years now. I was lucky enough to be able to babysit their beautiful girls. Their oldest daughter Cecelia is 6 and is a perfect little girl. Although she is effected by Fragile X, she does not let that stop her from going to school, playing with her sisters, and doing 6 year old things! She is one of the strongest little girls I know!

 

I hope to raise if anything awareness for this rare condition in hopes of helping to better the resources available for families and individuals challeged with this syndrome.

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To This Fundraiser

$1,179

MONEY RAISED
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  • Anonymous

    $100

  • Anonymous

     

  • Erica, Seth, & Ruger

     

  • Mindy Peskie

     

  • Natalie & David

     

  • Liz and Matt Smith

     

  • Knoll Family

    $100

  • Lou and Nancy Keller

    $50

  • Lidia Salvino

    $25

  • Lonnie and Lee Ann Batdorf

    $50

  • Lynn Springer

    $25

  • Grand Aunt Tracy

    $100

  • Leigh Christian Camryn and Violet

     

  • Ed and Diane

    $50

  • Emilie, David, Rigby & Reggie K

     

  • Pete, Briene, Cecelia, Scarlett and Kagney

     

  • Kevin, Lauren, Elijah, Adelaide, and Noah

     

  • Amy Steve and Sydney Anderson

     

  • The Niceswanger Family

     

  • Aunt Debbie and Uncle Lou

    $50

  • Denise Wisniewski

    $25

  • Anonymous

    $87

  • The Caraways

    $25

  • The Grahams

    $50

  • Aunt Joanne

    $25

  • The Panuccio Family

    $50

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236% Raised of$500 Goal

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The Team: $1,179 TOTAL RAISED SO FAR

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