Fragile X Syndrome is a genetic condition that causes a range of developmental delays and issues. The National Fragile X Foundation enriches lives through education and emotional support, promotes public and professional awareness, and conducts research towards improving treatments and finding a cure for Fragile X.
This organization is near and dear to my heart because I know a family directly effected by this condition. I have known the Batdorf family for about 5 years now. I was lucky enough to be able to babysit their beautiful girls. Their oldest daughter Cecelia is 6 and is a perfect little girl. Although she is effected by Fragile X, she does not let that stop her from going to school, playing with her sisters, and doing 6 year old things! She is one of the strongest little girls I know!
I hope to raise if anything awareness for this rare condition in hopes of helping to better the resources available for families and individuals challeged with this syndrome.