Thank you for joining us in our quest to support those with rare diseases!!
We are a support group based in Atlanta for people suffering from Ehlers-Danlos Syndrome, a rare disease that affects collagen in the body. There are ten types of Ehlers-Danlos syndrome (including a fatal type). We represent a diverse cross-section of society with members of all ages, genders, creeds, and experiences. However, we encourage each other through our individual journeys and share our hard-earned medical knowledge, so that somehow as a group, we keep ourselves from constantly re-inventing the wheel.
Scattered across Georgia (and dispersed wherever the wind has taken us), we unite for a virtual dash to support the many Americans suffering from a rare disease (defined as incidence <1:200,000.) Please join us in raising money for awareness and research into ours and many other rare diseases. We appreciate your support and encouragement, no matter how small it may seem to you.
If you are interested in more information about our group or our activities, please reach out to us via facebook: North Atlanta & Greater GA EDS Support Group. Thank you.