When you become a parent, you think of all the things you want to teach your child. What life experience can you share with them? How can you be their role model?
When our son Wyatt was born, it was the opposite. Wyatt, who has Down syndrome, spent his first 67 days in the NICU. He had open heart surgery on his first birthday, continues to fight to remain off a feeding tube, has a rare neurological disorder (only 50 other reported cases in the world) called Paroxysmal Tonic Upgaze, and has had several other procedures that make his total hospital day count an unfairly high number. Every time Wyatt wakes up from anesthesia and we see him for the first time he quickly turns to us, and gives us a great big smile. He’s taught me that there are no limits, and when things are tough you keep your head high and stay positive. He’s my role model, not the other way around. He’s shown me that you cannot let anyone put limits on you.
You’ve inspired so many people, Wyatt, including David Millar. Together, he and I will try to make you proud by breaking 3hrs and 21min (for the 3 copies of the 21st chromosome that create Down syndrome) in the NYC marathon.
David is a long time family friend. We used to work together when he was a professional cyclist for the team where I served as the Performance Scientist. He is an amazing athlete who has numerous accomplishments, including stage wins at the Tour de France. One thing that he doesn’t have on his palmares is a marathon.
Together, we’ve been training for Wyatt. And on November 3rd, in New York, David and I will attempt to break a 3hr and 21min marathon in honor of Wyatt and all of his homies with extra chromies. Please consider joining our mission by donating to LuMind, a foundation that is improving the lives of people living with Down syndrome.
Follow Tour_de_Wyatt on Instagram to watch David and I as we run for Wyatt.