Who are we and what is our mission? WithStand ALS is a 501(c)(3) charitable organization established by Nicole and Mike Cimbura to raise awareness about ALS and other neurodegenerative diseases and improve the lives of those afflicted along with their families and friends.
Who is Mike Cimbura? Mike Cimbura was diagnosed with amyotrophic lateral sclerosis(ALS), also known as Lou Gehrig's disease, in January 2015. In less than a year Mike was limited to a motorized wheelchair for mobility, a ventilator for breathing, a feeding tube for eating and an eye gaze computer (donated by Team Gleason) for communicating. Like former New Orleans Saint Steve Gleason who is fighting ALS too, Mike, is determined to inspire others by continuing to pursue life’s adventures despite his diagnosis. As a former competitive cyclist, Mike has never lost his passion for cycling. In each of the past two years, Mike has teamed up with Zach Yendra and successfully completed the ALS Death Ride Tour, a 235 mile cycling charity event riding a custom-made, YendraBuilt Bootlegger cargo bike.
How will WithStand ALS increase awareness of the deadly disease next? Now Mike, Zach and the rest of their team are preparing to ride 3,600 miles across the United States in 2018 to increase awareness for ALS and how it, unlike any other disease, gradually erodes a person’s ability to live independently while simultaneously impacting the lives of family and friends—it is a disease whose brutal, daily impact goes well beyond just the patient. WithStand ALS is partnering with Death Ride Tour Inc. to raise $100,000 to cover all expenses required to complete the six-week journey across the country. If we are fortunate to exceed our fund raising goal, all excess funds will go directly to WithStand ALS with 100% of it being applied to startup costs for building a 10-person ALS/neurodegenerative residential house/day center in Colorado.
Why are we focused on building an ALS/neurodegenerative residence? The mission of WithStand ALS improve the lives of those afflicted with ALS and other neurodegenerative diseases along with their families and friends. We believe that having an ALS residence is the best way to achieve our mission. Currently, there are only three ALS residences in the country—Boston, New Orleans, and Atlanta. The residence/day center we hope to build would foster independence for people with incurable neurodegenerative diseases, like ALS, enabling them to live their lives to the fullest with the assistance of state of the art technology and highly skilled, compassionate staff, and allowing them continued engagement within the community.
How can you help? For WithStand ALS to be able to raise awareness about ALS and build an ALS/neurodegenerative residence in Colorado, please support our ride across the United States by donating today. Thank you in advance for your support.