Over 20 years ago, Coach Lewia coached Spencer’s Dad, Nate, in wrestling. When Coach Lewia learned a former member of his Wrestling Family needed help, he was ready to do whatever he could.
Coach Lewia told his team of wrestlers about Nate, and that his son, Spencer, had been diagnosed with a rare and fatal genetic disease called Sanfilippo Syndrome, otherwise known as the Childhood Alzheimer's. There is no treatment or cure YET.
When Coach Lewia explained to his team that Spencer’s only chance at life was to raise money to fund the desperately needed research and clinical trials to find a treatment or cure, every wrestler was on board to raise as much money as he could. The team saw the urgency and how much it meant to their coach, to help Nate’s family and Spencer, and without any hesitation, joined the race to save Spencer’s life.
Inspiring and motivating seem like understatements when describing Coach Lewia and his commitment and dedication to helping Spencer. Coaches come and go in our lives, but not Coach Lewia. In our eyes, Coach Lewia is more than a coach; he’s our HERO!
Sanfilippo Syndrome is a fatal brain disease in children. It's rapidly degenerative and takes away a child's mind and body. It's often referred to as 'Childood Alzheimer's' due to the severe dementia that occurs. There is no proven treatment or cure YET.