After 7 years and 3 boys later we found out we were pregnant with our little girl. Thrilled with excitement, during the rest of her anatomy scan it was also noticed that blood flow was going to the lungs, returning to the heart and then flowing right back to the lungs without ever going to the body. This posed a question to the tech who was looking at Sophia in utero. It was then, when we later found out Sophia had what they called Transposition of the Great Arteries. Overwhelmed with fear and anxiety of what this meant for our princess, it was explained to us that this congenital heart defect effects 1 out of 5000 babies and unfortunately Sophia was going to need surgery right after birth.
The risk of having Sophia at a local hospital was too great, my husband and I researched and opted to have Sophia at Children's Hospital of Philadelphia being it was the second leading hospital that has dealt with this heart defect. In Sophia's case symptoms were going to appear at birth or very soon afterward.
On January 9, 2015 Sophia entered this world full of life and love. To our surprise she was not symptomatic, she did not show any signs of cyanosis, shortness of breath or poor feeding, but after seeing her so rosy and pink we faced the harsh reality she needed surgery 3 days after being born. If corrective surgery was not performed, the life expectancy was only going to be months. Sophia underwent open heart surgery on January 12 2015. Her arteries were successfully switched, however her Sophia will forever need continuous follow ups and testing such as echocardiograms with her cardiologist. Her risks for developing cardiac related issues will always remain high as she still has some minor leakage in her valves and due to her the arterial switch runs a higher risk of arterial stenosis earlier in life.
Sophia is now 6 years old and full of joy, love and life. She's hit all her milestones up to this date and continues to surprise us every day with something new.
We knew Sophia was special the moment we found out 7 years after our youngest we were pregnant with her. Because she's our only girl full of strength and our heart warrior with a special heart she fills an extra special place in ours, we ask you find a special place in yours for Sophia.