Welcome to our page!
When rylie was born she was diagnosed with Tetralogy of Fallot. At just 10 days old Rylie underwent open heart surgey to temporarily repair her heart and again for a major surgery known as the Nikaidoh procedure at only 7 months old. Although her heart is repaired she will eventually outgrow the artifical gortex they have used to repair it and need another surgery in her late teens early twenties.
Rylie is now 9 years old with no restictions. We see her amazing cardiologist at Cincinnati Childrens every two years.
This is our first year we will be participating in a CHD walk. She is super excited to be able to participate in events like this with other kids that she can share her story with.
All proceeds go to PCHA who serve and partner with Cincinnati Children’s Hospital and Nationwide Children’s Hospital to deliver care kits, dinners, and peer support to families of children undergoing critical medical procedures and long hospital stays.