Dear Friends & Family,
I have decided to run the 2019 Boston Marathon with Wake Up Narcolepsy to support my cousin James, who was diagnosed with narcolepsy with cataplexy when he was 10 years old. The year leading up to James' diagnosis was extremely difficult - he regularly felt as if he had not slept in 72 hours. He was tired, cranky, and frustrated that he would fall asleep everywhere. James loves playing sports and hanging out with friends, but he would avoid these things out of fear of falling asleep. His family knew something was wrong, but tests from his pediatrician all came back normal. After a year of doctors appointments with all kinds of specialists, James was finally diagnosed with narcolepsy with cataplexy. At first, it was a relief that he was not going crazy, and that the symptoms he was feeling had a name to them. However, soon it sunk in that this was something he would have to deal with his whole life. After his diagnosis, James began taking stimulants to help him stay awake during the day. Though the medicine helped with his day-time sleepiness, the medicine is not perfect. I've chosen to run for this cause to raise awareness for this disease that changed my cousin's life, and funds for research for a cure. Any and all support along the way is greatly appreciated - see you at the finish line!