Family and friends,
I'll be running the 2020 Boston marathon with "Wake Up Narcolepsy". I'm beyond thrilled to be running this iconic marathon with Wake Up Narcolepsy, an organization near my heart, since I was diagnosed with type 2 narcolepsy in June 2016. Narcolepsy is an incurable neurological sleep disorder that affects your sleep-wake cycles.
Knowing what I do now about narcolepsy symptoms I have been dealing with it most of my life. I can remember back to when I was a kid having vivid dreams, sleep paralysis, falling asleep in school, and disrupted sleep. I really didn't tell anyone what was all happening and even if I did no one knew what narcolepsy was back then.
My goal with this opportunity is to help raise awareness so others don't have to go through life as I did, not knowing that I was more than tired. While training for Boston, raising awareness and telling my story I will be raising money for narcolepsy research. All the money raised will be given to leading researchers in the narcolepsy field.
This race is definitely a bucket list race for me. For the past few years I've been running different events starting with OCR (obstacle course racing). Now I've been going up in distant running 2 marathons, a few 50ks, and a couple 50 milers. It's not easy doing these races while dealing with narcolepsy, but I want to show people they don't have to let what they are dealing with beat them. Are there days I don't want to train, YES, but I listen to my brain & body, some days I push myself and others I take the day off.
Thank you again to Wake Up Narcolepsy for giving me this opportunity and to the John Hancock Foundation for providing the bibs to nonprofits to help them raise awareness and funds for research