I am excited to team up with Wake Up Narcolepsy Inc. (WUN) running the Boston Marathon 2020, as we raise funds for research and bring awareness to Narcolepsy.
I, like many others, knew very little about this neurological sleep disorder. Narcolepsy effects 1 in every 2,000 Americans as well as 3 million people worldwide. With Narcolepsy, rapid eye movement sleep intrudes on wakefulness, and wakefulness intrudes on sleep. On average, patients have 6 physician visits and go 10 years before receiving an accurate Narcolepsy diagnosis, and as a result it is estimated that up to 50% of patients are under diagnosed.
Narcolepsy affects children and adults. Typical onset age of narcolepsy symptoms is between 10-17 and children with narcolepsy face greater challenges in school academically. Often there is an increase in tardiness, absenteeism as well as increased risk taking behavior. Children sometimes struggle with social exclusion as a result of behavioral issues.
Symptoms of Narcolepsy range from excessive daytime sleepiness, sleep disruption, cataplexy, which occurs in Type I narcolepsy varies from slurred speech to full cataplexy where one would experience weakness of the face, limbs, and trunk, causing them to slump to the ground, awake but unable to talk or move. Sleep paralysis as well as hallucinations may also occur.
Individuals with narcolepsy face challenges. I’m running with the Wake Up Narcolepsy Team (#TeamWUN) to help raise research funding and bring awareness to this neurological disorder. I feel it is important to help bring recognition to this disorder to help educate more people on it. This sleep disorder is not widely talked about, and therefore awareness is at a minimum. I would like to help raise that awareness level and help bring this devestating disorder closer to a cure. I am proud to have a niece who is a doctor studying Neurology. With more research we have more results, more answers and a better understanding of this disorder.
Wake Up Narcolepsy (WUN) is raising funds for narcolepsy research to accelerate better treatments and ultimately find a cure. Narcolepsy is a life long sleep disorder that affects 3 million people world wide. Without access to expert health care and medications, adults and children with narcolepsy often experience disabling symptoms which negatively impact their lives. Our runners in the Boston Marathon understand the potentially devastating effects of uncontrolled symptoms for people with narcolepsy and through this race advocate for all those affected by the condition. Please join them by donating today. Your contributions make all the difference!
Wake Up Narcolepsy is proud to be an official Partner of John Hancock in the Marathon Non-Profit Program. The Non-Profit Program provides over 1000 Boston Marathon® bibs to select non-profit organizations throughout the community. The John Hancock Marathon Non-Profit Program provides organizations with a signifiant fundraising opportunity.