In honor of our San Antonio friend, Anna, students from Mark T. Voss Middle School in Boerne, Texas are striving to spread awareness of EB and the need for research funding.
Join EB Research Partnership on November 18, 2020 at 8pm EST for Venture Into Cures, a first-of-its-kind digital event led by our Co-Founders Jill and Eddie Vedder. The show will feature uplifting stories of individuals with EB and their families along with celebrity friends Adam Sandler, Laura Dern, David Letterman, Judd Apatow, Jimmy Kimmel, Lukas, Micah, and Willie Nelson, Keb' Mo', Luis “King Kong” Ortiz, and many more! Streamed globally by our partner Amazon, Venture Into Cures is packed with noteworthy moments like the debut of a brand new song by Eddie Vedder inspired by EB stories. All proceeds benefit EB Research Partnership. Learn more at www.ventureintocures.org.
EB Research Partnership (EBRP) is the largest global nonprofit funding research to discover treatments and cures for Epidermolysis Bullosa (EB), a devastating and life-threatening genetic skin disorder that affects children from birth. Founded in 2010 by a group of dedicated parents and Jill and Eddie Vedder (Pearl Jam), EBRP has raised $40M and funded 80 EB research projects to date, impacting the clinical landscape with a 15x increase in the number of clinical trials in EB - from only 2 to over 30 today.