Simone was diagnosed at 20 weeks with several complex heart defects: tricuspid atresia, transposition of the great arteries, ventricular septal defect and coarctation of the aorta. The short version is that she has half a funky heart.
She underwent her first open heart surgery a few days after birth. When she was just two months old, she battled some pretty significant complications and it hospitlized her for 10 weeks. She had her second open heart surgery at four months. She still needs one more to “fix” her heart sometime in 2019. We are hopeful that that is all she will need but we can never be sure.
Unfortunately, Simone’s story is fairly common; nearly 1 in 110 babies are born with a congenital heart defect. That’s why we’re hoping you’ll join us this month as we support the Congenital Heart Center at the University of Michigan C.S. Mott Children’s Hospital. February is Heart Month, and we want to do all we can to help all families facing heart defects like us.
You can read more about Simone's story here.
PURCHASE SAVE A HEART T-SHIRTS HERE:
Allowing kids — who 25 years ago wouldn’t have survived — the opportunity to not only live, but to thrive. That’s the change we’re making together.
Nearly 1 in 110 babies are born with congenital heart disease, making it the No. 1 birth defect in the country. And, it’s a diagnosis that requires lifelong care.
The Congenital Heart Center (CHC) at the University of Michigan C.S. Mott Children’s Hospital is one of the largest and best pediatric heart programs in the U.S. It is also an international referral center for kids with complex congenital heart disease.
Our center provides the most advanced care for infants, children, and adolescents with all forms of heart disease, as well as for adults born with congenital heart defects. We aim to lead the way in improving quality of life for patients with heart defects by:
• Creating systems that allow congenital heart survivors to thrive
• Connecting heart centers across the country to enhance standards of care
• Enabling more research and faster discoveries
• Providing personalized medicine
• Jumpstarting development of innovative devices and therapies
Our Congenital Heart Center is committed to advancing research, inspiring clinical innovation, and providing assistance to families facing devastating heart conditions.
From February 1-28, 2019, we are raising awareness and funds through our Save A Heart campaign. Donations made during this time will support areas with the most critical needs in our CHC. Our goal is to raise $150,000 to fund important research, drive development of new technologies and therapies, and provide social work and assistance programs to families.
Every year, Congenital Heart Defect Awareness Week is held in February to promote education and understanding of heart defects. Save A Heart will overlap with these national efforts and help to rally additional public support to advance congenital heart care.
YOU CAN HELP
Join us to give kids with heart defects the best life possible. We’re happy to partner with you and share guidance and resources to help you attract support. Get involved by:
Forming a team on our fundraising website
• Email firstname.lastname@example.org for instructions to register, recruit teammates, and raise money.
• Encourage friends, family, and colleagues to make a gift and share the donation link.
Spreading the word
• Share information on social media. We can work with you to develop messaging.
• Order your Congenital Heart Center T-shirt, and wear it proudly.
Attending or hosting an event
• Join us for the Save A Heart masquerade event on Saturday, February 9, 2019. Visit umsaveaheart.org to purchase tickets and learn more.
• Hold your own bake sale, 5K race or walk, game night, local concert, birthday or anniversary party, or another event or activity with proceeds going to the Mott CHC.