Jen & George have graciously added Milestones to Maxwell to their donation registry!
Maxwell & Riley are adorable 2 year-old twins that love each other, Elmo and eating Plah Doh. They are heaven on Earth which is why Maxwell's family is fighting so hard to save him from a rare neurological disease called SLC6A1.
Maxwell was 1 of 50 in the world when he was diagnosed last summer and there was no treatment. It is every parent's worst nightmare - a sadness for which there are no words.
Maxwell's mother, Amber, left her career to Fight Like A Mother and create their own miracle.
Amber is working with a world renowned scientific team at the University of Texas Southwestern to develop a gene therapy that will cure Maxwell & every other affected child.
The Freed family must raise a minimum of $4,000,000 to advance a clinical trial. Every $5 inches them closer to their goal and goes directly to giving children a voice.
The Freed family is racing against the clock to save Maxwell.
SLC6A1 is a progressive disease with a movement disorder (like Parkinsons), speech apraxia and manifests into a debilitating form of epilepsy between the ages of 3 and 4 years.
Rare pediatric diseases are often deemed "Too Rare To Care" by academic institutions, the NIH and biotechs. Jen & George are helping to create a miracle in children's lives and we are SO THANKFUL!
For more information, please read about our journey in the Huff Post, NBC and The Daily Blast Live.
Thank you George & Jen! We wish you a lifetime of love, happiness and health. Congratulations to a beautiful couple.