Brian is my older brother, best man at our wedding, an amazing father, and the reason I have a picture of myself and Barack Obama in the Oval Office (this will always annoy marni who was not allowed to come because it was just first degree relatives). This team, amongst others, is here to work on saving his life.
When Brian first joined the Obama campaign in the primaries I made fun of him for wasting his time.
I was wrong.
When Brian called me to tell me his neurologist thought he has ALS I couldn't believe it. I read papers and studies to find holes in his presentation, to convince myself It was something else.
I was wrong.
When Brian set out to find novel therapies I thought about encouraging him to take more time to enjoy himself (not thinking about the fact that my brother enjoys himself the most when he's going as fast as possible).
Again, I was wrong.
Marni and I have watched as Brian and Sandra changed the landscape of ALS and chronic disease with I Am ALS. We have watched incredulously as researchers they have gotten involved with have made discoveries and progress I considered years to decades away a matter of months.
What the research team has found using Brian's cells is incredible. They have a clear mechanism, a targeted therapy, and some incredible initial results. I legitimately believe this therapy could make a huge difference, not only in Brian's life but in the lives of the 1/300 people who develop ALS.
This is a tax deductible donation to help fund research that may make a real treatment for ALS available to all comers. Its definitely in its developmental stages, and I make no promises, but if I've learned one thing in 36 years of being Brian's brother, its that every time I've bet against him I was wrong.