In Ukraine, parents of children with special needs are encouraged to hand their children over to state care. They are told their children are a burden on society. Children are sent to institutions where they are subjected to abuse and neglect. There is minimal support available to parents who fight to keep their children with them. Maya's Hope wants to help relieve some of the burden on these amazing parents and assist in keeping children with their families, where they belong.
"Hello. My name is Maria. I am 35 years old. I am a disabled person. I live in Ukraine and I am raising a disabled child alone. I have to ask you for help in order to save my son, because my son has a terrible diagnosis: MELAS syndrome. (MELAS (Mitochondrial Encephalopathy, Lactic Acidosis, and Stroke-like episodes) syndrome is a rare disorder that begins in childhood, usually between two and fifteen years of age, and mostly affects the nervous system and muscles.)
My son is 13 years old. He has high blood lactate. His health condition is deteriorating, in July 2020 he was saved from a pericarditis, now he has myocarditis. He was in intensive care in a serious condition.
In Ukraine, he is the only child with MELAS syndrome, and here they cannot offer treatment that will help Seraphim improve his health.
Seraphim needs constant monitoring of blood lactate (lactic acid) so he needs an analyzer. I cannot afford the cost of this machine and test strips. I am turning to you for help."
Can you help us support this brave little family by purchasing a testing device and test strips?