We are running as part of Team CdLS in the Baltimore Running Festival this October of 2018 in support of The Cornelia de Lange Syndrome Foundation (http://www.cdlsusa.org/).
Our family member, Wilder Fitch Thompson, was born with CdLS in October of 2014. Wilder is thriving for many reasons, but certainly in part due to the support he receives from the network of health care providers and families that the CdLS foundation provides. The foundation publishes and supports needed research that helps Wilder's various caregivers understand the unique ways to treat a person with CdLS. The Foundation creates a community for all people and families affected by CdLS - to counteract what can be a very isolating and unique experience. Nick - Wilder's Dad - and Wilder recently attended a conference that the foundation hosted and organized in Minneapolis for families and individuals with CdLS. At the conference our family made invaluable connections that will help Wilder and other people with CdLS reach their fullest potential.