HI, we are Team Rowen! My name is Brandie Padlo and I am Rowen's Angel runner! I met Rowen at my first angel event! Over the past few years he has become a huge inspiration to myself, my husband and so many others in the Jacksonville area! I am lucky enough to have the support of his AMAZING mother Christel! Rowen is a very special young man.
Rowen has a rare genetic error called Sanfilippo Syndrome. Sanfilippo syndrome is a progressive disorder, meaning that at birth the children appear typical and do not show signs of the disorder. As the disease progresses the children degenerate, losing the ability to speak, walk, eat and eventually lose their lives ( www.curesff.org ). However, this does not stop Rowen! He is the life of any party, race, day to day! His smile lights up a room and his love of snacks is just awesome!
I am so very lucky to be running with this guy! Please help us reach our goal!!!!!!!!