Twenty Years! In early June 2001 I was diagnosed with Pulmonary Hypertension. I quickly found out that it was a progressive disease causing high blood pressure in the lungs with no cure. Average lenth of survival from diagnosis at the time was 2 to 8 years with very few living 20 or more years. How long would I live? How do I live each day not knowing? First thought, trust in the Lord's love believing that no matter what happened He is with me. Then, live each day the best that I can. Since then, many ups and downs, struggles and joys, mostly gratitude for life and family and fight PH the best I could.
Fast forward 20 years, my three little boys are now wonderful young men. With proper medication that has worked well for me, I am able to live a normal life and even ride a bike (my favorite pass time). Since diagnosis I have been involved in raising awareness for PH and funding for research to improve treatments, develop new treatments and to find a cure. This year, I'm celebrating! Celebrating the gift of 20 years of life with PH! I'm celebrating the advances that have been made in treating PH and in understanding PH. I'm celebrating and continuing the fight!
From June 6 to June 17 I will be riding the Empire State Trail from Buffalo to New York City! My endpoint will be Columbia Presbyterian Hospital where I started treatment and follow up for PH! I am excited for this ride, this celebration, this journey and invite you to join me and Team PHenomenal Hope as we continue to work to defeat PH and to help PH patients live their best lives as they battle this dreadful disease.