The Falmouth Road Race has been an important part of Live4Evan's fundraising for the past several years. However, in 2020, the prestigious Road Race takes on even greater significance for Live4Evan due to the current global circumstances.
Live4Evan continues to provide three patient-family apartments for families traveling to Boston for cardiac care at Children's Hospital. The cardiac surgeries and procedures that these children receive are life-saving and cannot be delayed, despite the limitations that the COVID-19 pandemic has created. Without a place to stay, these families would otherwise not be able to travel to Boston for the world-class treatment their children need.
The pandemic has had a significant impact on Live4Evan's typical fundraising efforts. With two events postponed and the status of the Boston Marathon uncertain, Live4Evan views the virtual Falmouth Road Race as a terrific opportunity to raise the vital funds needed to continue to provide housing for the families of cardiac patients in Boston. The critical care for these children cannot be cancelled or postponed. We urge you to help however you can to ensure that their families have a place to stay while receiving life-saving medical treatment.
What Live4Evan has meant to Paul's family:
“At the beginning of our stay, we were switching off at my son’s bedside while either my husband or I would sleep at a local hotel. Hotels in Boston are very expensive, and this option was not sustainable week after week. One of the social workers in the cardiac unit approached us and asked if we would be interested in one of the Live4Evan apartments that had recently become available. Soon after, we were settling into a beautiful apartment that we would call home for the next few weeks.
My husband and I were new parents who were still in shock that our baby was so sick. We had been away from our home for almost 4 months altogether and found it difficult to focus on anything other than supporting and loving Paul while he literally fought for his life. Having the Live4Evan apartment eliminated so many of our worries and relieved a financial burden that we had not prepared for.
Having a place to take a shower, cook a hot meal or just lay our heads after some really difficult days was invaluable to my husband and me. It allowed us to recharge and be stronger for our son. While so many of the events in our life made it feel as if our family was being torn apart, the apartment helped us stay together. Interacting with Evan’s mom and learning about what the foundation does for families gave me hope for a future where CHD doesn’t only mean sadness and hardship; that while this isn’t a life we would’ve chosen, there are many gifts hidden amidst the challenges.
Paul has been home now for about a year, and although he will likely be facing another surgery in the coming months, he is growing, developing, and defying the odds every single day. He is a happy and spirited little guy, and we are forever grateful to Live4Evan for being part of the support system that lifted us up; helping us to remain strong and focus all our love and energy on our special little boy!”