Morgan's Journey By the Numbers:
- 8 years, 5 months, 9 days or 3.079 days fighting
- 21 pills taken a day, 2 infusions each month
- 13 hospitalizations in last year
- Has pain daily
- No FDA approved treatments
- Regularly sees 5 doctors for JM isues and has 14 currently on record (Up to 15 patient portals!)
- Struggles to explain rare disease to friends
With these medications, Morgan has learned to cope and fight. However, Juvenile Myositis causes her daily pain and symptoms. Many days she struggles to do normal daily activities, much less other activities. These medications alsohave many side efffects in the short term and long term. She has never hit remission, but we are hopeful that research can help. Since she was diagnosed, a lot has been learned about Juvenile Myositis, especially around genetics and autoantibodies that help researchers and doctors have clues on which treatments can help individual patients. Cure JM has been leading an international group of researchers and is the only non-profit committed to Juvenile Myositis. We are so appreciative of our family and friends and all the support over these years.
All proceeds benefit Cure JM Foundation, a non-profit dedicated to finding a cure for Juvenile Myositis, a life-threatening disease which causes the body’s own immune system to attack healthy cells and tissues. It can cause pain, weakness, inability to walk and disfigurement. It can affect virtually any system of the body, the heart, lungs, skin, muscles, and more. And there is no cure....YET!
But with support from friends and family like you, we’re getting closer to better treatments and a cure. We greatly appreciate the support of our family and friends.