January 1st 2019 marks 1 year with ITP for Logan who is now 3 years old.
Upon diagnosis he had excessive bruising & petechiae. He looked like he may have been beaten & road-rash (drug across the ground) WHICH WE KNEW had NOT happened. He had just gotten over a gnarly virus Hand Foot Mouth disease. On January 1st 2018 Logan woke up with what look liked blood blister on his lip and inside his mouth.
New Years Day 2018 Logan was taken to Emergency walk in clinic; who immediately directed us to go straight to Seattle Children's main campus with no stops and they'd call ahead for us.
Upon arrival we were rushed to a room. They took some blood.
The blood platelet count came back at less then 5K.
We were told our son has ITP. Based on blood count of less then 5K & symptoms with blood spots in mouth it put him at high risk for internal bleeding - brain bleeding. They recommend Logan to be admitted and IVIG treatment.
1ST round of IVIG - the increase of platelets was not too significant & very short lived. The next day after treatment he became sick; with symptoms of a brain bleed. They did a brain scan. No bleed. Side effect of treatment.
2nd round of IVIG - after a head bonk. Same results as before not much improvement in platelets, short lived, side effects; head pain, lethargic, puking.
1 round of steroids - did not see much improvement.
More blood draws than I can count to get an idea of platelet levels.
He is currently hanging out in the 30k platelet range.
He does fantastic with blood draws, says he loves his bruises, he is a typical 3 year old boy who is very active with some down days.
Every day with this little joy of ours is a blessing.
Come join our Team: Team Logan - Good Vibes. For the Love of Gracie 5K & blood drive April 20th 2019