I was very fortunate to spend lots of time with my niece, Maddie, during her numerous trips to CHOP (Children's Hospital of Philadelphia). My brother, Jeff, my sister-in-law, Malia, and Maddie would drive straight through from Stuart, FL to Ashburn, and would spend a day and a night with me before heading on up to Philly. I really got to know this sweet and funny little girl and watch her grow despite her very serious health issues. The video of her was shot on September 20, 2015 in my living room, and she passed away just five days later. No child should have to endure what she did. She never lived a moment without tubes and machines keeping her alive. The amazing part is how happy she always seemed. I absolutely adored her, and hope you all will contribute to Maddie's Big Heart Foundation. Thanks.