William Lanham, born August 27, 2015, had a 20% chance of living through his first heart surgery. We found out he had CHD at around 11 weeks into the pregnancy, but it wasn't until 26 weeks that we found out how extensive his CHD actually was. Originally they thought it was just a small VSD and that it would probably heal on it's own before he was born. Unfortunately, as the weeks went on and they were able to get better images of his growing heart we discovered that it was much worse and much more complicated than just a small VSD. He was diagnosised with TGA (Transposition of the great arteries) - in his case this meant his aorta had grown where his pulmonary artery should have been, and his pulmonary artery had grown where his aorta was supposed to be; his corrosponding arteries had also grown in the inccorect locations. He was also diagnosied with hypoplasia of the aortic arch, meaning his aortic arch was constricted/undersized. His pulmonary arteries were also constricted/undersized. He had other more minor issues, but still serious due to the other problems. He was born 3 weeks early via c-section at Johns Hopkins Hospital. He had his first open heart surgery on September 1st, at only 4 days old. His recovery was a nail biting experience for all of us as his health would take 1 step forward and then blindside us with 2 huge tumbles backwards. We spent months bouncing back and forth from living on the PICU with him and spending time with his 1 year old big brother, Charlie.
We were given the best Christmas present of all that year. 1 week before the holiday, after 3 and a half long stressful months, we finally got the news: William is being released from the hospital, he will be home before Christmas! He came home with a g-tube, and a laundry list of medications and of course we were still in a doctor's office at least once a week after that for months just about but still, he was home.
He ended up back in the hospital in the summer of 2016 due to failure to thrive and we celebrated his 1st birthday at Mount Washington. September 2016, William had his 2nd open heart surgery at Johns Hopkins.
Today - William is a happy, healthy and energetic 3 year old. His g-tube has been removed and his eating habits resemble that of a bottomless pit! He has been taken off ALL of his medications and we are down to yearly cardiology visits. He may need another heart surgery in the future but it is no longer a guarantee. We know that things could change in, literally, a heart beat but for now we will celebrate how far our little man has come