Declan was dianosed with juvenile dermatomyositis just before he was 2-1/2 in 2018 . He lost the ability to climb stairs, walk normally, run and even the ability to get off the ground by himself. He developed the tell-tall skin rash and Gottron’s papules on his knuckles and that’s when the rheumatologists at Cincinnati Children’s confirmed his diagnosis. Juvenile dermatomyositis (JDM) affects the skin and muscles and is chronic inflammatory autoimmune disease for which there is no cure, for now. This diaease is exceedingly rare, only occurring in 3 of every 1 million children, twice as many girls as in boys. Declan is truly one-in-a-million! We are walking to raise awareness for Declan and all other children battling this horrible disease.
All proceeds benefit Cure JM Foundation, a non-profit dedicated to finding a cure for Juvenile Myositis
Ohio “Walk Strong to Cure JM” Family fun event and fundraising walk
WHEN: April 27, 2019
Registration at 9:00 a.m., Walk and Festivities 10:00 a.m. to Noon
WHERE: Glacier Ridge Park
9801 Hyland-Croy Rd, Plain City, OH 43064
Join us for the 1st Annual Walk Strong to Cure JM - Ohio
This event is free and open to the public.
All proceeds benefit Cure JM Foundation, a non-profit dedicated to finding a cure for Juvenile Myositis, a life-threatening disease which causes the body’s own immune system to attack healthy cells and tissues. It can cause pain, weakness, inability to walk and disfigurement. It can affect virtually any system of the body, the heart, lungs, skin, muscles, and more. And there is no cure....YET!
But with support from friends and family like you, we’re getting closer to better treatments and a cure. Last year, we were able to fund research at 10 prestigious research institutions, helping to advance JM research at an unprecedented pace! Your support now will keep that momentum going.