If anyone questions why I work so hard to raise awareness and provide what we believe to be, life-saving movement monitors, here is more to my story. Many don't know that, not only did I lose my precious 16-year old daughter to SUDEP, but two years prior to that, my sisters and I lost our 77-year old Mother, also to SUDEP. After her passing, I scheduled appointments with both neurologists and was assured her passing was a fluke - that people don't die from seizures. It wasn't until after we lost Chelsea in 2009 that we even heard the term SUDEP. We never knew she was at risk and were never given the opportunity to monitor her at night.
We started The Chelsea Hutchison Foundation because we didn't want anyone else to suffer the losses we have suffered. Knowledge is power. Our main three programs include raising funds to be able to provide grants for our community to obtain fully-trained seizure-response service dogs, to provide life-saving movement monitors and grant wish trips to stressed families to participate in Epilepsy Awareness Day and Expo at Disneyland each year.
We believe strongly that EVERY epilepsy diagnosis should come with a night-time monitor. These amazing monitors/lines of defense are not covered by insurance and most we help are so emotionally and financially exhausted that they cannot obtain them on their own. We also believe that, had we known to even be concerned about our daughter's life - and our Mother's as well, our outcome may have been different.
Please consider a donation to my team, or better yet, join my team and help me raise more funds.