This will be my fourth year running this event and it's one of the most amazing this I do every year. By no means is the easy it's a constant wear and tear for 24 hours. This however is nothing compared to what these amazing kids have and will go through. If I can do something to help them in their lives to make it easoer or fun I'm all for it.
I can't wait to help make Charlotte's Big Wish come true!
Charlotte was born on August 13, 2013. Charlotte received her first echocardiogram, electrocardiogram and other testing when she was just three days old. She was in heart failure and had been born with Congenital Endocardial Cushion Defects. She underwent her first open heart surgery at 21 months old. She still has mitral valve regurgitation and stenosis which will eventually require more surgeries. She has also been diagnosed with Apraxia, Hypotonia, and most recently was diagnosed as having a genetic duplication on her 7th chromosome. Charlotte has experienced so much in her almost 6 years of life and remains an upbeat, caring, determined person.
Thanks to our sponsor PNC Investments, Andrew Bearden