Inspired by individuals with Cornelia de Lange Syndrome (CdLS), Team CdLS members take on the challenge to better the lives of people with the syndrome—many of whom struggle to talk, eat and walk. There is no cure for CdLS, but you can help ensure services and programs for families remain by supporting the CdLS Foundation.
The CdLS Foundation is a 501(c)(3) nonprofit institution that provides compassionate licensed social workers who assist in connecting individuals with CdLS and their families with experts from various medical, educational and therapeutic specialties who dedicate their invaluable knowledge and resources on a volunteer basis.
The CdLS Foundation is a really special place, where professionals work tirelessly to help individuals with CdLS and their families make connections with others who face similar challenges through the biennial family conference, family gatherings, phone calls and social media.
Funds raised are critical as the organization is the only one of its kind in the United States that supports the 2,900+ known individuals diagnosed with the rare syndrome and the 10,000+ who remain undiagnosed.
Please dig deep and make a donation – big or small! The donations directly impact these children and their families, which is something you can all be proud of accomplishing!