All proceeds benefit Cure JM Foundation, a non-profit dedicated to finding a cure for Juvenile Myositis
Hurricane Harvey delayed us for a while but it's time for....
Houston “Walk Strong to Cure JM” Family fun event and fundraising walk
WHEN: February 9, 2019 , 10:00 a.m. to 1:00 p.m.
WHERE: Rob Fleming Park, 6055 Creekside Forest Dr, The Woodlands, TX 77389.
Registration opens at 9:00 a.m.
Walk and Fesitvities: 10:00 a.m. to 1:00 p.m.
Join us for the Inaugural Walk Strong to Cure JM:
This event is free and open to the public.
All proceeds benefit Cure JM Foundation, a non-profit dedicated to finding a cure for Juvenile Myositis, a life-threatening disease which causes the body’s own immune system to attack healthy cells and tissues. It can cause pain, weakness, inability to walk and disfigurement. It can affect virtually any system of the body, the heart, lungs, skin, muscles, and more. And there is no cure....YET!
But with support from friends and family like you, we’re getting closer to better treatments and a cure. Last year, we were able to fund research at 10 prestigious research institutions, helping to advance JM research at an unprecedented pace! Your support now will keep that momentum going.
In May 2016 Ava was diagnosed with a rare and serious auto immune disease called Juvenile Dermatomyositis (JDM or JM).
JM is an autoimmune disease in which the body’s immune system attacks its own cells and tissues. Weak muscles and skin rash are the primary symptoms. There is no cure for JM. Some children experience a mild form of the disease and may go into remission. Others follow a more severe and potentially debilitating course that can be life-long. Some JM patients will lose range of motion. Some will battle an array of serious complications, resulting in the inability to walk, ongoing pain, disfigurement and even death. Whether the course of the disease is mild or severe, JM is life changing for all of these children and their families.
JM is hard to diagnose because it is so rare. In our hearts we knew something was wrong with Ava for about a year prior to diagnosis and beginning treatment. Ava presented with a painless, rash all over her body. She also experienced daily fatigue and exhaustion as well as stomach pain. It was hard for her to get through a normal school day. Since her diagnosis she has been treated with a chemotherapy drug, an antimalarial med, steroid and IVIg infusions. We are grateful to God that, while Ava is still receiving infusions, she is pretty much a normal kiddo now. We continue to follow her labs monthly and hope to share one day that she is in remission.
We thank you for your love and support and your prayers for Ava.
Sabin, Lisa, Kendall and Ava Holland