Alice (8 yrs old) was diagnosed with juvenile dermatomyositis (JDM) in May 2018. JDM is an autoimmune disease that is characterized by skin rash, fatigue, muscle weakness, and pain, which are caused by inflammation in the blood vessels (vasculitis). JDM affects 3,000-5,000 children in the USA.
Since her diagnosis by the pediatric rheumatology team at Children's Hospital of Pittsburgh of UPMC, she has been on an aggressive treatment plan with the goal of reaching remission in 2 years. Her treatment involves daily medicine, steroids, weekly injections at home, and monthly infusions at the hospital. Due to her immune suppression treatment, she is at risk at getting sick at any time. She must avoid sun as it can aggravate the condition.
Alice is one tough cookie and a real trooper. She is blessed to have an early diagnosis and clinical team that is responsive to her medical needs. Alice makes the best of every of the situation with her treatments at the infusion clinic and multiple overnight stays in the hospital.
Please support Team Alice as we “Walk STRONG to CURE JM”.