Quite simply, every single donation made to The Susie Foundation goes exactly where it should: towards serving families living with ALS across southern New England.
We support these families in two unique ways:
Flex Grant Program
Our Flex Grant Program provides financial assistance to families to help alleviate expenses that are not traditionally covered by private insurance, Medicare, Medicaid, and other assistance programs. This ultimately, help individuals living with ALS to continue living safely and comfortably in their own homes.
Since we launched the program in 2014, we have provided over $100,000 directly to families living with ALS through reimbursement grants totaling up to $1,000 each. These grants have helped cover the costs of everything from home modifications and wheelchair repairs, to dietary supplements and clinic copays.
ALS Youth Mentoring Intiative
Our ALS Youth Mentoring Initiative brings the power of one-to-one mentoring to the lives of children who have a parent, guardian, or family member living with ALS. Within an evidence-based and outcomes-focused program model, the ALS Youth Mentoring Initiative builds on the best practices of community-based mentoring to bring an intentionally designed, high-quality, and professionally supporting one-to-one mentoring model to the lives of children impacted by ALS.
In this program, screened, trained, and professionally supported volunteer mentors works closely with parents and agency staff to provide their mentees with dedicated time and attention for at least a few hours a couple of times each month. During unstructured bi-weekly activities, filled with conversations and shared activities, mentors and mentees develop a relationship that helps youth manage the everyday challenges of growing up alongside ALS.