Please help Mason and Kathleen Porter raise money as they are running the 2019 Falmouth Road Race (7.1 hot and hilly miles) benefiting the Sturge-Weber Foundation on August 18th. Our dear family friends, the Mcintyres have had to deal with Sturge Weber since their son, Ryan, now age 15 was diagnosed as a baby. Pam, my friend and Ryan's mom started this road race fundraiser which has raised $740,000 to date. This will be her 10th and final year of the road race and we are trying desperately to get her and the rest of the team to $1,000,000. This will be by far the furthest distance Mason (age 11) has run and KP has been injured for the last 3 months so this will be a challenge! Our goal is to raise as much money as we can, have fun, and finish! We thank you in advance for your support!! Mason and Kathleen Porter
Sturge-Weber Syndrome is a congenital
condition characterized by a facial port-wine birthmark and varying degrees of glaucoma and/or seizures. The Sturge-Weber Foundation is a non-profit organization with a mission of improving the quality of life for people with Sturge-Weber Syndrome, through collaborative education, advocacy, research and support. SWF has dedicated 30 plus years to sponsoring educational programs and funding research (including contributing to the ground-breaking discovery of the GNAQ gene that causes SWS) to help improve treatments and ultimately to find a cure.
To find out more about SWS and the Sturge-Weber Foundation, visit our site at www.sturge-weber.org.
